By writing this blog, I am trying to change the world for people like me who are suffering greatly not because our impairment requires it, but because no one's told us it's okay to live and work and date and go to doctor's appointments and hang out with friends and talk to family when we can't always mouthspeak. I have my own biases, both as a social justice type who's keen on disability acceptance, and as an individual who experiences conditions with common labels in very specific, sometimes idiosyncratic ways.
But no one else's opinions or choices are mine. If someone else with my same disability labels believes ardently in medical treatment and doesn't want to use alternate communication, their perspective is something for me to learn from and honor. (But most importantly it's their perspective and I have no right to an opinion on it if they don't want to have that discussion with me.)
As I write this blog, I'm trying to balance the ideological points I want so badly to get across because I think they can save other people very real suffering for very little if any cost, with the awareness that they are ideological points, and that promoting any one ideology runs the risk of erasing someone else's experiences and needs.
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